Welcome to our mental health hub.

Supporting mental health

Good mental health (sometimes called emotional wellbeing, or simply 'wellbeing') is part of looking after yourself. Mental health is about the way you think and feel, and your ability to deal with ups and downs. 

It is important to take care of yourself, whether you have Juvenile Idiopathic Arthritis (JIA) or have a family member with JIA. We have collated some free resources that can help you look after your mental health. 

Many children and young people with JIA will not need additional mental health support, but remember that it is important to access the support you need if you or your child need it. 

Resources

"I love the video, very relatable and useful for parents and children alike." Click to access the free Brain in my hand webinar with child psychotherapist Chloe Haines.

NEW! Brain in my hand webinar

"Brain in my hand" is a way to understand our reactions and behaviours, and is particularly useful for children and young people with Juvenile Idiopathic Arthritis (JIA) to help cope with some of the challenges they face, such as injections and blood tests. In this video Chloe Haines, a child psychotherapist, explains "Brain in my hand" and how it can be used by children with JIA and their families. 

Watch our new free webinar here.

Managing the injection experience at home

This short video provides some great ideas for managing worries about needles. The video is under 10 minutes long and includes tips about creating a positive injection experience at home from a clinical psychologist with over 25 years' experience of supporting people with chronic pain. 


If you would like a printable copy of the tips given during the video, you can find them here.


With thanks to Saskya from KAISZ, and to SOBI for their permission to share this video. 

Needle phobia

One of the more common concerns around mental health that we hear from parents is anxiety around injections and blood tests. Here are some resources that can help.

Tips and ideas from parents and caregivers on how to ease the pain of injections
These are some suggestions given by parents and carers, as previously shared for WORD Day.

Kipo's spot-the-bird distraction sheets can help during injections and blood tests.

Find out more and download the sample sheets here.


The stress bucket is a way to help manage your worries. It can help with injections and blood tests, other hospital visits and procedures, and anything else that causes you or your child worry.

Using the idea of a bucket filling up with our worries can help us manage our stress. The raindrops filling the bucket represent the things that can make us feel worried. If the bucket gets too full, it can cause problems and we can feel overwhelmed. To help prevent the bucket getting too full, we can put good habits in place to help us relax. These are things that we enjoy doing and are represented by the holes in the bucket that release the stress.

Click here to download a copy of the printable worksheet.

Cassie + Friends, a family support charity in Canada, have produced this Injections 101 video with tips and suggestions for giving injections for JIA. They have plenty more tips on their website, too.

Hospital appointments and procedures

Knowing what to expect before going to hospital can help reduce worry. Here are some videos produced by What? Why? Children in Hospital that help explain some of the tests and assessments that children with JIA may experience. You might find it helpful to watch these with your child before an appointment. We have included the most relevant ones below, although their YouTube channel has more (please note that not all are relevant to JIA).

Anxiety

General anaesthetic

Blood tests

Infusions

MRI scans

General mental health and wellbeing support

These are some of the best resources from around the world to help support your mental health.

The Teapot Trust provide mental health support for children and families coping with chronic conditions by delivering art therapy. Their website includes a number of videos to help with aspects of your mental health, and that of your child. A few of our favourites are below.

They also have advice for parents and carers, and tips for general positive wellbeing for your child.

For anyone in the UK needing specific support, please contact us and request a referral form for the Teapot Trust or see their website for details of how to self-refer to their service.

The Wren Project logo.

The Wren Project support people aged 18 and over who have a diagnosis of an autoimmune disease such as JIA. The Wren Project is a listening service where individuals can talk about the emotional and social impact of diagnosis, free from judgement or advice. It is a place to feel heard as you are, validated in your experience. 

To be eligible you must live in the UK,  have access to a phone, and/or WiFi, and willing and wanting to talk about your autoimmune disease and the impact it is having on your life. 

Anyone over the age of 18 can self-refer to the Wren Project here. 

Mindfulness and Journaling 

If you need urgent support...

If at any point you need urgent mental health support please contact one of these mental health services, and remember you can also speak with your own GP or hospital team.


If you or your child are at immediate risk of harm, call the emergency services on 999.