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I have just returned from the EULAR Congress in Madrid, where I spent an exhausting few days learning, sharing and working with a wide range of people from around the world.
EULAR is the European League Against Rheumatism, although participants travelled from every part of the globe to attend this annual meeting. This year happened to be the joint Congress with PReS (the Paediatric Rheumatology European Association), something that happens every four years. Before I went, I knew it would be big, but had no idea exactly what to expect. There were 14,000 delegates, from clinicians, other health professionals (including physiotherapists, podiatrists and pharmacists), charities, parents, patients, patient organisations and corporate reps.
There were thousands of attendees, there were dozens of talks, presentations, seminars and poster tours happening at the same time so everyone was split up. The disadvantage is that there were several things at the same time that were of interest, but most of the materials will be available to delegates online later on. The program runs from early morning through to late evening, too, so no time to see the sites of Madrid.
So, what were the highlights? Well, here’s just a few:
A few of our colleagues from ENCA.
And, of course, a presentation by JAR project about the age of onset of JIA in children. This was based on the survey we carried out last year, but was a new finding - that girls with oligo or poly JIA develop the condition earlier than boys. This may help with future diagnosis and with helping to understand how the condition first forms and develops. The published abstract can be found here: https://ard.bmj.com/content/78/Suppl_2/2184.2
We also used the opportunity to ‘soft launch’ our new campaign - ThinkJIA. Much more on that, soon, as we finalise the separate website and prioritise the need for early referrals to paediatric rheumatologists to help with early diagnosis.
Thank you to EULAR for supporting my attendance with a bursary.