My JIA
My JIA
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An information booklet for children and young people, parents, carers and schools about living with Juvenile Idiopathic Arthritis.
An information booklet for children and young people, parents, carers and schools about living with Juvenile Idiopathic Arthritis.
Our booklet called My JIA is a comprehensive guide to living with Juvenile Idiopathic Arthritis (JIA). It is aimed at anyone who has been diagnosed with JIA, as well as their parents, carers and schools. It is packed full of information that will help you on your own journey with JIA, from diagnosis through to treatments and looking ahead to the long-term. All of the information has been checked by a multi-disciplinary team of health professionals, as well as patients and parents, and will help you understand your condition better.
How to get a copy:
My JIA is available as a free digital download here. We encourage you to provide a copy to your school, as it is full of information for them about your condition and how they can help and support you.
My JIA is included in our Little Box Of Hope packs for families affected by JIA.
We want to make this resource available to as many people as possible, which is why it is primarily available as a free digital download. However, if you require a paper copy, please contact us.
The new and updated version of My JIA is available from the above link. Juvenile Arthritis Research would like to thank all the health professionals, parents, carers, people with JIA and others who have helped develop and check the contents of My JIA.
Prof Helen Foster, Emerita Professor Newcastle University UK
Laura Skerratt, Paediatric Occupational Therapist
Samantha Leach, Extended Scope Physiotherapist in Paediatric rheumatology
Verna Cuthbert, Extended Scope Physiotherapist Paediatric Rheumatology
Ameenat Olufunmilola (Lola) Solebo, NIHR Clinician Scientist and Honorary Consultant Paediatric Ophthalmologist
Dr Anne-Marie McMahon, Consultant Paediatric Rheumatologist, and Sheffield Children’s rheumatology team
Dr Janet E McDonagh, Clinical Senior lecturer in Paediatric and Adolescent Rheumatology
Octavio Aragon Cuevas, Lead Peadiatric Rheumatology Pharmacist, Alder Hey Children’s NHS Foundation Trust
All of our Parent and patient partners, non-clinical advisors and Council of Reference
Please note, in line with our ethical and environmental policy, to reduce wastage, printed copies of existing My JIA booklets will remain in use until stocks run out when they will be replaced by the new edition. All medical information remains accurate.
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