Family support - supporting children and families with JIA

Family support

Being told that your child has a long-term health condition can be scary or daunting, and can leave you feeling isolated and alone. Children can feel frightened, and unsure of what is happening. They may not understand why they are experiencing symptoms that their peers don’t have. They may be worried about the medications they will have to take.

One of our aims is to support children with juvenile idiopathic arthritis (JIA) and their families in the UK:

  • We have developed A Little Box Of Hope to show that children with juvenile arthritis, and their families, are not alone from the point of diagnosis. Find out more about the project here.
  • Many children who have had JIA for a while experience frustration and anxiety, and at times can struggle with the daily physiotherapy, regular injections or routine blood tests. We support them through our Kipo’s Heroes scheme. Find out more, and nominate a Kipo’s Hero, here.

We have made the Kipo book, written for children with JIA, available to download for free here (PDF).

Read the stories of some children and young people with JIA in our case studies.

Find out more about Juvenile Arthritis Research (who we are and what we do), and about juvenile idiopathic arthritis.