JIA Learn: Update

If you follow us on social media, you will have seen lots about JIA Learn recently. The JIA Learn project is a British Society for Rheumatology (BSR) and NHS England ‘Getting it Right First Time’ funded programme, aiming to improve the quality of care for children and young people with Juvenile Idiopathic Arthritis (JIA) living across the UK.

12 paediatric rheumatology hospital teams from across the country have been working through an improvement collaborative model, coming together in peer-learning events to share ideas, learn Quality Improvement (QI) methodology and work towards improving patient care.

The voices of children, young people and their families are central to improvements. And you have been amazing at giving your feedback in response to our recent social media posts which we have passed onto the JIA Learn team. 

The team wanted to give an update along with an overarching message of thanks to each one of you who have been involved in commenting on our social posts and giving valuable insights and feedback that can be used throughout the project. 

Over to the JIA Learn project team:

"The JIA Learn teams met in London on 4th July – a monumental occasion in the collaborative as this was the first time hosting all 12 teams! We had a jam-packed agenda with a variety of different sessions – including a workshop on co-production, health coaching and what we can learn from other collaboratives. The teams also had some dedicated time to reflect on how they are progressing within the collaborative and what their next steps are.

It was fantastic to share ideas and thoughts about co-production, and to hear how some of the teams are already managing this and where others need to improve to get to where they would like to be.

We shared feedback from Juvenile Arthritis Research, which was collected in via social media and their private network group. This feedback was useful to help us hear from children, young people and their families on how they feel about their experience with their JIA care, and what they would like to tell their healthcare team. It was also fantastic to share some of the feedback submitted by patients and their families cared for by some of the teams involved in the collaborative!

These discussions will continue throughout the monthly coaching calls and when we next meet again face to face in November. We will continue to work with Juvenile Arthritis Research to connect with JIA patients and their families so that we can ensure their voice is heard."