Support

We provide support packs to children and young people diagnosed with JIA. Families can request one of our Little Box of Hope support packs here. 

Our innovative School Toolkit provides schools with all the tools and resources they need to confidently support children with JIA in their setting as well as information about raising awareness in the school community. These can be requested by schools and other educational settings in the UK. 

We have also developed our Parent Zone hub with resources for parents and hospitals to help support children at school. 

We run a quarterly parent Zoom meeting for newly diagnosed families as well as local events for those diagnosed with Juvenile Idiopathic Arthritis. 

1:1 support is available upon request for families and schools. 

We have several publications and initiatives that can support children and families with JIA - we include these resources within our support packs and they are also accessible online:

• My JIA

• Kipo

• Peg-Leg

• 'I have JIA' cards

For younger children, online support information and resources can be found at Kipo's Corner.

For older children and young people, online support information can resources can be found in our Teen Area.

For an overview of many of our resources - please see our "Your JIA Journey" clickable tool to access the relevant resources and information. 

All of our resources have been co-developed with children and young people and their families, along with teachers and medical professionals. We receive exceptionally high feedback scores as well as a huge number of positive comments from families and schools stating how helpful our support resources have been to them. 

Awareness

We know that low awareness can cause delays in diagnosis. We hear about the delays in diagnosis from many of the families that we support. That's why we developed our #ThinkJIA campaign aimed at frontline health professionals such as GPs and A&E departments to increase awareness of JIA with the aim of improving referral and diagnosis times. 

We use similar messaging amongst families to build confidence in seeking support if they are concerned about their child. 

If you know of a GP practice or A&E department who would like to receive one of our #ThinkJIA packs containing awareness posters and reminder postcards for clinicians, please request one here. 

Research

We are involved in research to understand the causes, effects and impacts of JIA and work towards finding a cure. Find out more about our approach to research and some of the projects that we have been involved in here. 

We are patient partners for many research projects. Please remember that the earlier you involve us in your research project, the better we can collaborate together. 

We launched our JIA VIP research panel in 2023 and have over 230 families signed up to take part in research opportunities. You can find out more about our research panel at www.jarproject.org/vip

And finally...

We love to hear from families, healthcare professionals and research teams with feedback, to understand your priorities and to see how we can better work together to support children and families affected by JIA. 

So please do get in touch and if you are a healthcare professional, please ask us to add you to our mailing list for clinicians to hear our latest news. 

Don't forget to connect with us on social media - it's another great way to stay in touch!