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BSR 2025 - Manchester

Welcome to our BSR Virtual Stand

If you are in Manchester for BSR2025, come and visit us and speak to our volunteers! You can also find us:

Tuesday 29 April at 15:50 - Stage 2 - Short talk - Juvenile Arthritis Research: The one-stop-shop for JIA
Wednesday 30 April 10:30 to 11:10 - Poster screen 10 - Development of patient resources for children and young people with Still’s disease
Wednesday 30 April 10:30 to 11:10 - Poster screen 11 - The association between ethnicity and deprivation, and changes in disease activity at six months following initiation of methotrexate amongst children and young people in the UK with Juvenile Idiopathic Arthritis
Wednesday 30 April 12:40 to 13:10 - Stage 2 - Development of patient resources for children and young people with Still’s disease

Our aims of research, awareness and support.

Welcome to our
BSR Virtual Stand

We've pulled together this summary page of some of the resources that we have available to support you and your patients. If you are a paediatric rheumatologist, rheumatology clinical nurse specialist or part of a paediatric rheumatology team, you can request one of our hospital packs for your hospital or clinic here.

Juvenile Arthritis Research is a parent-led charity focussing on three core aims;

Providing support for children, young people and families affected by Juvenile Idiopathic Arthritis.
Raising awareness that children and young people get arthritis too.
Conducting research and collaborating in research initiatives to help improve the lives of those affected by JIA and helping to get closer to a cure for the condition.

Alongside these we are involved in advocacy, policy change and quality improvement projects.

Support

We provide support packs to children and young people diagnosed with JIA. Families can request one of our Little Box of Hope support packs here.

Our innovative School Toolkit provides schools with all the tools and resources they need to confidently support children with JIA in their setting as well as information about raising awareness in the school community. These can be requested by schools and other educational settings in the UK.

We have also developed our Parent Zone hub with resources for parents and hospitals to help support children at school.

We run a quarterly parent Zoom meeting for newly diagnosed families as well as local events for those diagnosed with Juvenile Idiopathic Arthritis.

1:1 support is available upon request for families and schools.

We have several publications and initiatives that can support children and families with JIA - we include these resources within our support packs and they are also accessible online:

For younger children, online support information and resources can be found at Kipo's Corner.

For older children and young people, online support information can resources can be found in our Teen Area.

For an overview of many of our resources - please see our "Your JIA Journey" clickable tool to access the relevant resources and information.

All of our resources have been co-developed with children and young people and their families, along with teachers and medical professionals. We receive exceptionally high feedback scores as well as a huge number of positive comments from families and schools stating how helpful our support resources have been to them.

Awareness

We know that low awareness can cause delays in diagnosis. We hear about the delays in diagnosis from many of the families that we support. That's why we developed our #ThinkJIA campaign aimed at frontline health professionals such as GPs and A&E departments to increase awareness of JIA with the aim of improving referral and diagnosis times.

We use similar messaging amongst families to build confidence in seeking support if they are concerned about their child.

If you know of a GP practice or A&E department who would like to receive one of our #ThinkJIA packs containing awareness posters and reminder postcards for clinicians, please request one here.

Research

We are involved in research to understand the causes, effects and impacts of JIA and work towards finding a cure. Find out more about our approach to research and some of the projects that we have been involved in here.

We are patient partners for many research projects. Please remember that the earlier you involve us in your research project, the better we can collaborate together.

We launched our JIA VIP research panel in 2023 and have over 230 families signed up to take part in research opportunities. You can find out more about our research panel at www.jarproject.org/vip

And finally...

We love to hear from families, healthcare professionals and research teams with feedback, to understand your priorities and to see how we can better work together to support children and families affected by JIA.

So please do get in touch and if you are a healthcare professional, please ask us to add you to our mailing list for clinicians to hear our latest news.

Don't forget to connect with us on social media - it's another great way to stay in touch!

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